Dealing with Hidradenitis and pregnancy

June 19, 2009

Warning: Woe is me post. May be a good idea just to skip this one!

We have been away for a couple of wonderful days on holiday, and everything was perfect until last night when I felt a familiar bump come up on my bottom. I knew that my recent run of luck was too good to be true. I have a Hidradenitis flare up again. I was used to getting these every month before I was pregnant but the last one I had was in February, around week 12 so the fact that I had made it to 36 weeks was nothing short of amazing.

Anyway, what this means is that I cannot sit, or walk or lie down comfortable. The only place I get some relief is in the bath where I cannot spend all my time. I got so little sleep last night and this just means that I am in a foul mood.

Sorry, complaining so much but this hurts and it scares me. I have learnt to live with the condition in the best way that I can but what happens when it flares up and I have a baby to look after. What happens if walking is too painful, if I cannot sit comfortably to feed him?

I want to scream and cry that it is not fair but that will not achieve anything. Will go and get a cuddle from Mr C and some reassurance that everything will be okay and I will perk up again I am sure. Being in pain and not having pain killers always makes life seem worse anyway.

Looking on the bright side, we really did have a lovely time away together.

5 Comments

  • Reply clareybabble June 19, 2009 at 10:05 pm

    How awful that must be for you. I'd never heard of it before until I read your post. Pregnancy is uncomfortable enough!
    And you'd be surprised at what you can get through when you have a gorgeous baby to look after x

  • Reply SandyCalico June 19, 2009 at 10:30 pm

    You poor thing. I hadn't heard of it either.
    The body is a strange thing, as is the effect of pregnancy on the body, perhaps after you've had the baby it will stay away. Thinking of you x

  • Reply hssupport July 8, 2009 at 2:23 pm

    Sorry to hear about your Hidradenitis Suppurativa.

    I too suffer from HS and haven't found anything as yet that give me relief.

    There is lots of information and support here: http://www.hs-support.uni.cc/

  • Reply Becks January 8, 2010 at 3:19 am

    Hi – I have it too and I made it 24 weeks without one – I started walking on a treadmill again. It sucks soooo bad. Your post made me want to cry for you. Just wanted to say congrats on the baby and hugs of support for the owies.

  • Reply Kristina March 6, 2011 at 8:47 pm

    I have suffered from HD for about 15 years now, I've grown to overcome the pain and the scars, the moodswings, everything but I'm entering a chapter in my life that I didn't expect. I'm 4 months pregnant, and although I'm not showing yet, I get horrible breakouts. Infect, I have yet to receive “a break”, as I call it. I can only imagine how tough it will be when I'm walking around with a huge belly, and there after, a child to care for. I know it won't be easy, but know that your not alone. We can help you through this, and you can complain all you want bc only WE know the pain and agony we endure. I fain strength everyday just knowing I'm giving birth to someone I created. Let yourself gain strength from that, and give yourself to God. If you ever need to talk, please email me: knsanta@hotmail.com.

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